Monthly Archives: January 2017

Happy New Year!

Happy New Year! (Well, at least it was when I wrote this.  But like everything else in my life, it seems January has been a  tornado swirling past me as I continue to run and run.)

As 2016 comes to a close, I reflect. Oh, how my life has changed since my 2009 diagnosis of both vestibular neuritis and cervical dystonia!  To be honest, every single aspect of my life has changed.  Some things for better and some for worse.

2016 brought huge changes for me. The biggest being what I am doing right now, writing.  It’s still hard for me to wrap my mind around this writing thing.  Not only do I have a blog, but I have work featured in several publications.  I am a published writer. Starting a blog wasn’t even a whisper in the farthest corners of my mind as 2016 began.  

This year I  “officially” took ownership for my rare disease, cervical dystonia. I shared with my friends and family the true extent of my symptoms, and the struggles I have endured for years.    Many of you watched my progression in 2016 from a silent sufferer to (a still somewhat reluctant) advocate. Through writing, I was no longer silent.  And the choice I made to speak up, hurt people close to me. I lost friendships. When the severity of my condition was revealed, friends were hurt and thought I didn’t think they could handle it.  In reality, I am a quiet person who doesn’t like to draw attention to myself, and never wanted to be a burden.  Needless to say, I shocked many with my raw, honest writing.

I bought myself two Christmas presents this year. These necklaces are huge for me. They pull my ownership of living with a chronic diseases front and center for everyone who crosses my path to see.  Friends, neighbors, strangers. If I hadn’t started writing, I wouldn’t have found the courage to go for these necklaces.   And I love them!!!

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I don’t know what God has in store for me in 2017. But I am excited to continue my journey with all you. God bless!